We have been so busy lately. Last weekend we attended the Make-a-Wish Gala, where Sissy performed her dance that was part of her wish last year. Great weekend, fancy hotel with room service. It was everything the girls loved. It was really fun to dress up and go to such a fancy party too.
Both girls seem to have colds hanging on. I wish the warm weather would come. It snowed last weekend, which looked really great from the 40th floor of our hotel!
Parent-teacher conferences are next week so we'll have half days. Hopefully everyone can rest and get rid of these colds. Hopefully we can get out one day for some fun. Spring break is the week after that. We spent today looking for decorations for Sissy's 7th birthday. I can't believe how big my girls are getting.
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About Me
- KBelle
- Pacific Northwest, United States
- Our family's journey raising daughters, one with neuromuscular disease, one without, and how we muddle through hoping to do the best for them both Sissy is almost 7 and has Spinal Muscular Atrophy II, a genetic neuromuscular disease. She is funny, imaginative and loves horses. She can do anything she wants and drives her pink wheelchair without fear. "The Princess" is 3 and she is ham with a capital "H" she is the one to make us laugh when things have gone wrong. She has a fiesty temper and a sweet side too. If she could turn into Ariel or Sleeping Beauty today she would without hestitation I am a former nurse, who plays one at home now. I love to bakewith my girls,craft, decorate and and lucky to be married to the best husband ever!
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