Wednesday we spent all day at Children's Hospital for Sissy's bi-annual checkup. She had her hip xray and her left hip is not yet dislocated but the right is for sure. I don't know why with everything she has gone through & that we have learned since her diagnosis with SMA this was really hard for me. The idea of her hips being dislocated & nothing can be done to help is just so hard for me to deal with. Luckily she isn't in any pain right now but that could change. Her scoliosis is unchanged but we are going to go ahead with a back brace now. We're hoping that it will help her sit better at school and ease some fatigue. We talked quite a bit about H1N1 of course. I think we feel a little better about our decision to keep her in school but it is still such a scary thought always in the back of my mind. She has had one shot & we are hoping when it comes time for the second one there will be one available for her.
Yesterday she had to go to the dentist for a filling and she wouldn't open her mouth for the shot. For some reason this year she has become terrified of needles. Even with all the hospitalizations and other vaccinations she has never had a problem. But this year has been all about screaming and fighting over shots.
I just wish cold and flu season was over so she didn't have to go through all this. 4 shots this fall is not her idea of fun...
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